Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Wednesday, 30 September 2015

It's Time to Start the Conversation

Those of you who follow me know that in my past life in the US I was very open and honest about my mental illness. But since moving to the UK, I've kind of kept it under wraps except for my husband obviously and a few select people. I think I did this partially because of the general anxiety of getting to know people in a new country and my perceived belief that there is more of a stigma in the UK than in the US. Right or wrong, I kept quiet and just smiled through the pain. But it has been eating at me since day one. Getting to know new people was great, but keeping my true self hidden was hell. It didn't usually feel like a big deal. But listening to people whine about petty bullshit on Facebook (which I wouldn't even be on if weren't to keep up with friends and families lives in America), would grind my gears to a halt. 

Now let me get one thing straight. I know I do not know the struggles of every single person I'm friends with on Facebook. People have shit they have to deal with: illness, death, divorce, financial difficulties, etc. And I commend the people that don't throw their dirty laundry out on the Facebook line for the world to see. However, of the 245 "friends" I have, I'm pretty sure most of the whining is just that, whining. For someone who literally has to fight through every day, because yes even good days are exhausting, it wears you down. If you have a mental illness, you understand what I'm saying. If you don't and you are reading this, then you may want to take a step back and think about your daily life and whether you are one of these people who speaks without thinking. Think about the old adage of "walking a mile in another's shoes". So in other words, don't be a whiner.

But enough about Facebook and all the pettiness that it entails. I'm here to talk about mental illness. Specifically my mental illness because that's what I know. I cannot speak of other's experiences with mental illness, because I haven't walked a mile in their shoes. I have, however, done quite a bit of research on my illness and read a lot of different blogs about it. We all have pretty much the same things to say: first and foremost it sucks cause it's a life sentence, getting help is a pain in the ass because frankly it's treated differently than other chronic illnesses, the stigma still exists, and the world is horribly undereducated. 

Let me throw out an example... Robin Williams... When he committed suicide a little over a year ago, there was shock and dismay across the world. How could someone so talented and wonderful be so sad that they decided they only had one way out? While I personally was just as shocked and saddened by the news, I understood how he felt at the moment just before, because I've been there. I've been at that precipice in time. I tried three times to end my life. And for those of you who don't know statistics, men are more likely to finish the act because they choose things like guns or hanging, while women choose pills or slitting their wrists which are more likely to have life saving possibilities. I used pills every time. One time, I came frightenly close. But back to Robin, the outpouring of public sympathy led me to believe people would start the conversation about mental illness. It didn't. People simply reminisced about his films or more shockingly called him selfish. Suicide is not selfish. If you haven't lived in a hell that has led you there, don't judge. You know nothing of the pain that gets you there. But the conversation seemed to stop there. And that's where the problem lies. Communication.

I haven't talked about my illness openly in years because of fear. I'm not ashamed, I was just scared of how people would react. I was scared about how I would be able to get a job if I was honest. Truth be told, I have found that there are times I have needed to or should have lied about my illness but didn't to my misfortune. I was honest on a life insurance application about my illness and was denied coverage because of it. That's unacceptable. Everytime I fill out an employment application regarding medical info there is always a tick box for "do you or have you suffered from depression". I always hesitate. I mean sure depression is a part of Borderline Personality Disorder and Bipolar, but it's just the tip of the iceberg. Honestly it's a damned if you do damned if you don't thing. If I say no and get ill while working, I lied on my application. If I say yes, I might not get the job. And that's not fair.

I shouldn't have to hide or feel ashamed of my illness. Sadly I do sometimes. I liken it to when AIDS was first making headlines. People didn't, and still don't, want to announce it to the world because of the recoil reaction people have. You won't "catch" my mental illness anymore than you will "catch" AIDS by speaking to me. I'm not contagious. But people don't understand and people fear what they don't understand. So I want and need to educate people. If I save one person from stepping off that ledge, I've done my job.

If you know someone who has a mental illness, gently ask them about it. You may just find they are willing to speak if you are truly willing to listen. But heed my words, be willing to commit. Be willing to listen, understand, educate yourself, read about it, and comfort. Don't just nod and hear without listening. That is exactly the kind of reaction that will push us away. We have so much uncertainty in our lives, friends and family can not be one of them. I don't want or need sympathy. I'm okay, really. I will be okay. Just realise that my days at best are still a fight. And at worst a nightmare you never want to experience, and I pray you never do. I'm not really religious but I'm spiritual, and I pray for all my family, friends, and acquaintances daily. I pray for them to have happy lives. I pray for them to understand the things they don't understand. I pray for them to appreciate the little things that are taken for granted. Because I take nothing for granted. I've seen and lived through horrors I wouldn't wish upon my worst enemy. Life is precious. We all are precious. Listen and care. Educate yourself. About all things foreign to you. If we all did... What a wonderful world it could be.



Tuesday, 14 May 2013

Hi. My name is Kay. This is my story...

Greetings and salutations! Welcome to my first ever blog about living with mental illness. As anyone who suffers this affliction will tell you, the stigma can be unbearable. Most people attempt to hide their illness (which only makes it worse usually), because the general population doesn't understand it. Even in today's day and age of Internet, people don't get it. And frankly the fact that everyone and their brother is taking Zoloft, Paxil, or the like for what is essentially a temporary case of mild depression, is actually making the situation worse if you ask me.

If I had a penny for everyone I know who has taken an antidepressant for a short period of time, well let's just say I would have a pretty big jar of pennies. These normal, average, healthy people are not mentally ill. They do not have an illness that will be with them forever. They will not be learning coping mechanisms, defining boundaries, and accepting limitations. They will take their low dose of whatever for a little while and keep on going. They will realise one day they hadn't taken the drug for a week and still felt great and will forget why they took it to begin with. I am not one of those people.

I can remember not feeling "normal" all the way back to early childhood.  And as I got older, it only got worse. By my early teens, mood swings, severe depression, and anxiety were becoming the standard. I had no idea what was going on and I knew it wasn't normal. My friends weren't like this. When it got really bad I isolated myself. The rest of the time I created a facade for friends, family, and strangers. The character I created was very self-assured and charismatic. Everything I wasn't. Most people had no idea what was going on behind the scenes. But playing this part was exhausting and in retrospect probably exasperated my mental deterioration. The cracks started to appear to close family and keeping up the facade became more difficult so I went back to isolating myself. It wasn't long before I had my first complete breakdown at age sixteen and was subsequently hospitalised for five months.

Prior to my first institutionalisation and even for years after, whenever I was in a depression, my mom who clearly had no idea how to deal with me, would just say "pull yourself up by your bootstraps" and keep going. It took her some 20 odd years to realise it wasn't that easy. And frankly, if you are like me, someone trying to simplify the situation like that just makes things worse. If it were so simple to just "be happy", don't you think I would? Who would choose to be mentally ill? I didn't choose this anymore than someone with diabetes chose their disease. If they could just wake up and will themselves into having normal insulin levels, I'm pretty sure they would.

Well mom, my bootstraps are broken. But I'm still alive and kicking!

This is my story, my life. I am bipolar with borderline personality disorder. I have panic attacks and I get depressed. But I've learned to live with my illness. Most of the time now, I'm very content (I say content because to me that's a state of being, not just a raw emotion like happy). I still have bad days or even weeks, but I'm surviving and thriving. I have embraced my "crazy". I'm not a psychiatrist or psychologist, but I have spent the last 25 years learning to live with my illness, educating myself, making every day better than the day before. I'm not an expert. I'm just a woman with a story to tell. And I hope it helps someone get through another day.

Let's begin...